Kerri DeNies with son Gregory MacPhee


Monitoring will consist of a multidisciplinary team consisting of your pediatrician, neurologist and endocrinologist. You may decide to see a dietitian as well. Included in this section is a list of specialists, a description of the tests they will be performing, and information on how often testing will take place. 

Please remember to keep the information for your pediatrician, neurologist, and endocrinologist easily accessible. Keep a record of scheduling appointments as they are outlined under each of the specific monitoring sections. Remember it may take some time to get an appointment with your neurologist and endocrinologist, so please schedule in advance.