Find ALD Resources by State
California
Lucille Packard Children’s Hospital at Stanford
725 Welch Rd.
Palo Alto, CA 94304
Neurology:
Keith Van Haren, MD
650-723-0993
Maura Ruzhnikov, MD
650-723-0993
Endocrinology:
Sejal Shah, MD
650-721-1811
University of California Davis
3160 Folsom Boulevard
Sacramento, CA 95816
Neurology:
William Benko, MD
916-734-3588
Illinois
Lurie Children’s Hospital of Chicago
225 E. Chicago Ave
Chicago, IL 60612
Neurology:
Jennifer Rubin, MD
312-227-6120
Endocrinology:
Donald Zimmerman, MD
800-543-7362
Maryland
Johns Hopkins Medicine
707 N Broadway
Baltimore, MD 21205
Neurology:
Gerald Raymond, MD
443-923-9200
Kennedy Krieger Institute
707 N Broadway, 500V
Baltimore, MD 21205
Neurology:
S. Ali Fatemi, MD, MBA
443-923-2772
Massachusetts
Massachusetts General Hospital
165 Cambridge St.
Suite 820
Boston, MA 02114
Neurology:
Florian Eichler, MD
617-724-6510
Minnesota
University of Minnesota Masonic Children’s Hospital
420 Delaware St. SE, MMC 366 Mayo 8366A
Minneaopolis, MN 55454
Bone Marrow Transplant:
Paul Orchard, MD
612-626-2313
orcha001@umn.edu
Troy Lund, MD
612-625-4185
lundx072@umn.edu
Ashish Gupta, MD
612-626-2508
gupta461@umn.edu
New York
Weill Cornell Medicine- Memorial Sloan Kettering Kids
525 E 68th St, Box 91
New York, NY 10065
Neurology:
Eric J Mallack, MD, MBE
212-746-3278
Memorial Sloan Kettering Kids
1275 York Ave
New York, NY 10065
Bone Marrow Transplant:
Jaap-Jan Boelens, MD, PhD
212-639-3641
Children’s Hospital at Montefiore
3415 Bainbridge Ave
Bronx, NY 10467
718-741-2450
Endocrinology:
Molly Regelmann, MD
718-741-2450
North Carolina
Duke Department of Pediatrics
2400 Pratt Street, DUMC Box 102501
Durham, NC 27710
Neurology:
Joanne Kurtzberg, MD
919-668-1100
Pennsylvania
Children’s Hospital of Philadelphia
3401 Civic Center Blvd.
Philadelphia, PA 19104
Neurology:
Amy Waldman, MD
215-590-1000
Adeline Vanderver, MD
215-590-1000
Laura Adang, MD
215-590-1000
Endocrinology:
Jeffrey Roizen, MD, PhD, FAAP
215-590-1000
Utah
Primary Children’s Hospital/ University of Utah
81 Mario Capecchi Dr
Salt Lake City, UT 84113
Neurology:
Josh Bonkowsky , MD, PHD
801-213-3599
For more resources related to your Adrenoleukodystrophy diagnosis, read our ALD Family Guide.
