ALD Family Survey

This survey is completely voluntary and should only take a few minutes to complete.  It is our hope that we may help your family through this diagnosis by providing you with current information and advice from others in our community.

Thank you for sharing with us.

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If you’re submitting information for more than one child affected by ALD, please fill out for each:

Gender

Based on sex chromosomes

Gender

Based on sex chromosomes

Questions to help better understand your diagnosis

How was your child diagnosed with ALD?

Select one or more:

Would you like to be contacted by an ALD Alliance Ambassador?

An ALD Alliance Ambassador is another parent that is currently caring for a child diagnosed with ALD and is knowledgeable about the disease

What specific areas are you hoping to learn more about with regards to ALD?

Please check all that apply:

How did you learn about the ALD parent’s guide?

Choose one:

The content on this website has been reviewed and approved by our Board-Certified Clinician Members on the Board of Directors at ALD Alliance, all of whom are experts in ALD. 

Jaap-Jan Boelens, MD, PhD
Gerald Raymond, MD
Molly Regelmann, MD
Eric Mallack, MD

We’re building a community.

Resources

Our Organization

Sign up here to keep up-to-date on important developments and information. 

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