ALD Family Survey

This survey is completely voluntary and should only take a few minutes to complete.  It is our hope that we may help your family through this diagnosis by providing you with current information and advice from others in our community.

Thank you for sharing with us.

If you’re submitting information for more than one child affected by ALD, please fill out for each:



Questions to help better understand your diagnosis

How was your child diagnosed with ALD?

Would you like to be contacted by an ALD Alliance Ambassador?

What specific areas are you hoping to learn more about with regards to ALD?

How did you learn about the ALD parent’s guide?