ALD Events, Participation, and Supportive Resources

For more information on each event or recording, use the links below:

January 18, 2023

Virtual Town Hall: Gene Therapy for ccALD

January 13-14, 2022

6th Annual ALD Standards of Care Conference

An Ongoing Project

Coping with the Psychological Impact of ALD

January 14 – 15, 2021

5th Annual ALD Standards of Care Conference

Ask Congress to Support Newborn Screening in EVERY State

More Information

Sign the Petition

ALD Alliance (formerly Aidan Jack Seeger Foundation) needs your help with:

“Save Our Babies – Vote Yes on Aidan’s Law: Eradication of Death by Zip Code”

SIGN THIS PETITION

33

States Testing

260

Babies Diagnosed

As of January 2023

Let’s make something beautiful together.

The content on this website has been reviewed and approved by our Board-Certified Clinician Members on the Board of Directors at ALD Alliance, all of whom are experts in ALD.

Jaap-Jan Boelens, MD, PhD

Gerald Raymond, MD

Molly Regelmann, MD

Eric Mallack, MD

We’re building a community.

Resources

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