ALD Events & Participation

Throughout the year, The ALD Alliance & other organizations dedicated to ALD research & outreach. For more information on each event, use the links below:

Ask Congress to Support Newborn Screening in EVERY State

More Information

April 20, 2022

ALD Newborn Screening Lab Consortium

January 13-14, 2022

6th Annual ALD Standards of Care Conference

May 1, 2021

ALD Connect Bootcamp: Newborn Screening & Non Cerebral Families

January 14 – 15, 2021

5th Annual ALD Standards of Care Conference

Sign the Petition

ALD Alliance (formerly Aidan Jack Seeger Foundation) needs your help with:

“Save Our Babies – Vote Yes on Aidan’s Law: Eradication of Death by Zip Code”


States Testing


Babies Diagnosed

As of February 2022

Let’s make something beautiful together.