Together We Can: Life with ALD

 

The diagnosis of ALD can be overwhelming. Remember you can have a normal life after the diagnosis. Managing your life with this diagnosis is doable. Know that your life goes beyond the doctor’s office and there are many support systems to help you navigate this disease.

You may want to keep a journal to describe how you are feeling each day and keep a record of anything that seems out of the ordinary.

Please make sure to seek support and reach out to family, friends or others affected by ALD if you feel alone. I know from experience most have never heard of this disease. It may be good to join a facebook group and seek others going through the same things as you are. You are not alone and can connect with others when you need someone to talk to.

Make sure to take care of your mental health. You can’t help your loved one if you are not taking care of yourself first. There are feelings of anger, confusion, sadness, etc. Please make sure to reach out to a psychiatrist or a support group if you need to. Take care of your body and your mental health at the same time. Seeing a therapist, eating healthy, exercising is important to keep your overall life in a good place and keeping positive about working through this diagnosis.

Elisa Seeger

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