“Have you just received a diagnosis of ALD through a newborn screening? Through ALD newborn screening, affected children have the opportunity to benefit from life saving treatment.”

Have you just received a diagnosis of ALD through an ALD newborn screening? Below is an Adrenoleukodystrophy Overview.

What is ALD?

Adrenoleukodystrophy, or ALD, is a deadly genetic disease that affects 1 in 17,000 people. As it is an X-linked genetic disease, which means, it most severely affects boys and men.

How do you get ALD?

ALD disease is a genetic, or inherited, disorder. If a mother is a carrier of ALD, there is a 50% chance of passing this on to her children. If a father is a carrier of ALD, he will pass this on to his daughter.

How is ALD diagnosed?

ALD is diagnosed through a blood test, which analyzes the amount of very long chain fatty acids, which are elevated in ALD. Genetic testing will confirm the diagnosis. An MRI diagnoses cerebral ALD.

Today: The ALD Alliance is counting on you

ALD Alliance (formerly Aidan Jack Seeger Foundation) needs your help with
“Save Our Babies - Vote Yes on Aidan’s Law: Eradication of Death by Zip Code”.

“Have you just received a diagnosis of ALD through a newborn screening? Through ALD newborn screening, affected children have the opportunity to benefit from life saving treatment.”

"You will have the constant support and guidance of ALD specialists and other ALD parents. You are not alone."

Have you just received a diagnosis of ALD through an ALD newborn screening? Below is an Adrenoleukodystrophy Overview.

What is ALD?

How do you get ALD?

How is ALD diagnosed?

Today: The ALD Alliance is counting on you

23 States Testing

260 Babies Diagnosed

As of April 2021

The content on this website has been reviewed and approved by our Board-Certified Clinician Members on the Board of Directors at ALD Alliance, all of whom are experts in ALD.

We're building a community

“Have you just received a diagnosis of ALD through a newborn screening? Through ALD newborn screening, affected children have the opportunity to benefit from life saving treatment.”

"You will have the constant support and guidance of ALD specialists and other ALD parents. You are not alone."

Have you just received a diagnosis of ALD through an ALD newborn screening? Below is an Adrenoleukodystrophy Overview.

What is ALD?

How do you get ALD?

How is ALD diagnosed?

Today: The ALD Alliance is counting on you

23 States Testing

260 Babies Diagnosed

As of April 2021

Item successfully added to your cart