The 1992 movie “Lorenzo’s Oil” is based on the true story of the Odone family and their quest to find a cure for their son, Lorenzo, who was diagnosed with ALD at the age of 6. Augusto Odone, Lorenzo’s father, developed an oil to treat Adrenoleukodystrophy. The oil is still considered experimental and may have some benefit in normalizing the VLCFA (Very Long Chain Fatty Acids), which may prevent the childhood cerebral form of ALD. Lorenzo’s Oil is not helpful for boys that are symptomatic. It has not been demonstrated to offer any benefit, but if used, is best used on boys between the ages of 2-10 who are asymptomatic.
For more information:
- Adrenoleukodystrophy: Biochemistry and management
- The efficacy of Lorenzo’s Oil
- Newborn Screening and Expanded Access: What does this mean for Lorenzo’s Oil?
Dr. Gerald Raymond, professor of Genetic Medicine and Neurology at Johns Hopkins, Baltimore, MD gave an educational webinar on adrenoleukodystrophy and Lorenzo’s Oil.
Please go to: https://www.nutricialearningcenter.com/en/metabolics/webinar/ald-and-lorenzos-oil-an-update/
Lorenzo’s Oil is available through WEP Clinical:
Yasmin Khera
Outreach Manager
951 Aviation Pkwy Suite 200
Morrisville, NC 27560
Mobile: 1 919 454 6467
Office: 1 919 694 5088
Fax: 1 919 822 1701
Email: ykhera@wepclinical.com
Please visit us at wepclinical.com for further information.
