5th Annual ALD Standards of Care Conference January 14-16, 2021 GENERAL MEETING Thursday, January 14 - Friday, January 15, 2021

Session 1 | Program Introduction and Welcome from Welcome Elisa Seeger and Miranda McAuliffe

SESSION 2 | Legislative Updates - Elisa Seeger, Miranda McAuliffe, Emily Fields - bluebird bio

SESSION 3 | GvHD - Graft versus Host Disease Jaap-Jan Boelens, MD, PhD - MSKCC

SESSION 4 | Newborn Screening Parent Experience Sarah Tong - Massachusetts

Session 5 | Neurology and Endocrinology Guidelines - Eric J. Mallack, MD, Molly O. Regelmann, MD

SESSION 6 | ALD RegistryPaul Orchard, MD - University of Minnesota

SESSION 7 | Neurodevelopmental Testing in ALDAram Kim, MD

SESSION 8 | Newborn Screening Parent Experience Amanda Valdez - Minnesota

SESSION 9 | ALD CME Webinar Overview Chris Napolitan, Vice President - PRIME Education

SESSION 10 | Updates in Vitamin D Josh Bonkowsky, MD, PhD, Keith Van Haren, MD

SESSION 11 | Telehealth for ALD : S. Ali Fatemi, Catie Becker, Chris Porter, Amena Smith Fine,

SESSION 12 | Navigating the Psychological Impact of ALD: Family Panel & Discussion