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5th Annual ALD Standards of Care Conference January 14-16, 2021 GENERAL MEETING Thursday, January 14 - Friday, January 15, 2021
Session 1 | Program Introduction and Welcome from Welcome Elisa Seeger and Miranda McAuliffe
SESSION 2 | Legislative Updates - Elisa Seeger, Miranda McAuliffe, Emily Fields - bluebird bio
SESSION 3 | GvHD - Graft versus Host Disease Jaap-Jan Boelens, MD, PhD - MSKCC
SESSION 4 | Newborn Screening Parent Experience Sarah Tong - Massachusetts
Session 5 | Neurology and Endocrinology Guidelines - Eric J. Mallack, MD, Molly O. Regelmann, MD
SESSION 6 | ALD RegistryPaul Orchard, MD - University of Minnesota
SESSION 7 | Neurodevelopmental Testing in ALDAram Kim, MD
SESSION 8 | Newborn Screening Parent Experience Amanda Valdez - Minnesota
SESSION 9 | ALD CME Webinar Overview Chris Napolitan, Vice President - PRIME Education
SESSION 10 | Updates in Vitamin D Josh Bonkowsky, MD, PhD, Keith Van Haren, MD
SESSION 11 | Telehealth for ALD : S. Ali Fatemi, Catie Becker, Chris Porter, Amena Smith Fine,
SESSION 12 | Navigating the Psychological Impact of ALD: Family Panel & Discussion
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