Download our parent's guide PDF!
What is ALD?
What is ALD
How do you get ALD?
What causes ALD?
Different forms of ALD
Who should be tested?
Monitoring My Son
It Is Treatable
Bone Marrow Transplant
Amnio & CVS
Things to remember
5th Annual ALD Standards of Care Conference January 14-16, 2021 GENERAL MEETING Thursday, January 14 - Friday, January 15, 2021
Session 1 | Program Introduction and Welcome from Welcome Elisa Seeger and Miranda McAuliffe
SESSION 2 | Legislative Updates - Elisa Seeger, Miranda McAuliffe, Emily Fields - bluebird bio
SESSION 3 | GvHD - Graft versus Host Disease Jaap-Jan Boelens, MD, PhD - MSKCC
SESSION 4 | Newborn Screening Parent Experience Sarah Tong - Massachusetts
Session 5 | Neurology and Endocrinology Guidelines - Eric J. Mallack, MD, Molly O. Regelmann, MD
SESSION 6 | ALD RegistryPaul Orchard, MD - University of Minnesota
SESSION 7 | Neurodevelopmental Testing in ALDAram Kim, MD
SESSION 8 | Newborn Screening Parent Experience Amanda Valdez - Minnesota
SESSION 9 | ALD CME Webinar Overview Chris Napolitan, Vice President - PRIME Education
SESSION 10 | Updates in Vitamin D Josh Bonkowsky, MD, PhD, Keith Van Haren, MD
SESSION 11 | Telehealth for ALD : S. Ali Fatemi, Catie Becker, Chris Porter, Amena Smith Fine,
SESSION 12 | Navigating the Psychological Impact of ALD: Family Panel & Discussion
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