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FIND ALD RESOURCES BY STATE

Lucille Packard Children’s Hospital at Stanford

725 Welch Rd.
Palo Alto, CA 94304

Neurology:

  • Keith Van Haren, MD
    650-723-0993
  • Maura Ruzhnikov, MD
    650-723-0993

Endocrinology:

  • Sejal Shah, MD
    650-721-1811

University of California Davis

3160 Folsom Boulevard
Sacramento, CA 95816

Neurology:

  • William Benko, MD
    916-734-3588

Lurie Children’s Hospital of Chicago

225 E. Chicago Ave
Chicago, IL 60612

Neurology:

  • Jennifer Rubin, MD
    312-227-6120

Endocrinology:

  • Donald Zimmerman, MD
    800-543-7362

Johns Hopkins Medicine

707 N Broadway
Baltimore, MD 21205

Neurology:

  • Gerald Raymond, MD
    443-923-9200

Kennedy Krieger Institute

707 N Broadway, 500V
Baltimore, MD 21205

Neurology:

  • S. Ali Fatemi, MD, MBA
    443-923-2772

Massachusetts General Hospital

165 Cambridge St.
Suite 820
Boston, MA 02114

Neurology:

  • Florian Eichler, MD
    617-724-6510

University of Minnesota Masonic Children’s Hospital

420 Delaware St. SE
Minneaopolis, MN 55454

Bone Marrow Transplant:

  • Paul Orchard, MD
    612-365-1000

  • Troy Lund, MD

Weill Cornell Medicine- Memorial Sloan Kettering Kids

525 E 68th St, Box 91
New York, NY 10065

Neurology:

  • Eric J Mallack, MD, MBE
    212-746-3278

Memorial Sloan Kettering Kids

1275 York Ave
New York, NY 10065

Bone Marrow Transplant:

  • Jaap-Jan Boelens, MD, PhD
    212-639-3641

Children’s Hospital at Montefiore

3415 Bainbridge Ave
Bronx, NY 10467

  • 718-741-2450

Endocrinology:

  • Molly Regelmann, MD
    718-741-2450

Duke Department of Pediatrics

2400 Pratt Street, DUMC Box 102501
Durham, NC 27710

Neurology:

  • Joanne Kurtzberg, MD
    919-668-1100

Children’s Hospital of Philadelphia

3401 Civic Center Blvd.
Philadelphia, PA 19104

Neurology:

  • Amy Waldman, MD
    215-590-1000

  • Adeline Vanderver, MD
    215-590-1000

  • Laura Adang, MD
    215-590-1000

Endocrinology:

  • Jeffrey Roizen, MD, PhD, FAAP
    215-590-1000

Primary Children’s Hospital/ University of Utah

81 Mario Capecchi Dr
Salt Lake City, UT 84113

Neurology:

  • Josh Bonkowsky , MD, PHD
    801-585-2457

 

ALD ORGANIZATIONS

Aidan Jack Seeger Foundation

70 North 15th St.,

Brooklyn, NY 11222

www.aidanjackseegerfoundation.org

ALD Connect

35 Village Rd, Suite 100,

Middleton, MA 01949

www.aldconnect.org

Brian’s Hope

Address to come

www.brianshope.org

Fight ALD

PO Box 3318,

Vista, CA 92085

www.fightald.org

The Stop ALD Foundation

500 Jefferson St., Suite 2000,

Houston, TX 77002-7371

www.stopald.org

ULF

224 North Second St., Suite 2,

DeKalb, IL 60115

www.ulf.org


 

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